I have many pictures to still post from our awesome summer in Boston, but it will take me a while to get to it. . .
So I guess Regan, Cole, and I are moving to Connecticut to get the Lyme's Disease treatment that I need. I was informed by my doctor in Connecticut that I need another PICC line treatment as soon as possible. And not for 4 weeks this time. . .for twelve. My bloodwork shows that I am at HIGH risk for blood clots, not to mention I have about ten new viruses that have shown up because of my low immune system. I am extremely anemic and have hypothyroidism. No wonder I have been feeling like total crap!! And this all happened because of a tick the size of a poppy seed!! The Doc says that because all of it is caused from the Lyme's Disease, we have the best chance of getting these infections to go away by doing another PICC line treatment.
I looked into it, and no one in Utah will do the treatment for that long because they would have a lawsuit on their butts for doing it. In Connecticut, it is a STATE LAW that chronic Lyme's Disease is COVERED!! No matter how long you need treatment!! The doctor I have been working with out there unfortunately can't order the treatment I need because he is a Fibromyalgia and Chronic Fatigue doctor, so I will need to find a new infectious disease specialist out there to do the treatment. But we know everything will work out. We have prayed intensely over this decision to do this without my family close by to help me through the treatment or to live in Connecticut where I will get the treatment I need for a whole lot less than $90,000! We have felt the spirit confirm that Connecticut is the place for my little family. We will probably live there for at least two years so Regan can finish school.
I am scared to death about leaving my family, but this is what Heavenly Father has told us we need to do. I know He will take care of us and help us find our way. My family is packing up my apartment as we speak while I rest at my mom's. Regan will fly to Connecticut on Tuesday and look for a job, a place to live, and health insurance for me to get my treatment. We are hoping that he can figure this all out in a few weeks, then he will fly back home. Then we will pack up the moving van and drive across the country. My doctor REALLY didn't want me to travel before this treatment because it takes so much out of the body, but we really don't have another choice.
So here we come Connecticut!! Please be a good little state and protect my family!
Saturday, August 29, 2009
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